Thursday, August 18, 2011

Win some, lose some

Well today was my follow up to 6wks of Azilect.  Apparently I misunderstood the doctor during the last visit and had stopped taking my Sinemet which he had not intended.  That lead to a miserable 6wks although I did experience some improvement with the dystonia in my feet.

I was excited to be told that Sinemet was actually part of my treatment plan because I had experienced near 100% improvement taking it prior to the Azilect.  In addition he added COQ10 supplements, 1200mg per day.  There is some evidence to suggest COQ10 has a delaying action in the progression of the Parkinson's and I am hoping that the mix of Azilect and COQ10 will give me more active years particularly since I am very early on in my diagnosis.

Overall at this moment I am struggling with muscle spams in my right forearm and some intermittent tremor in my right hand.  I also have some dystonia in my right foot and some postural instability.  I think most of these symptoms will resolve themselves with the Sinemet.

He also suggested that I "stay active" but I am not yet clear on my boundries.  Prior to my diagnosis I was an avid cyclist.  The last two or three rides I had prior to my diagnosis were extremely unpleasant.  I am trying to find an activity that I can enjoy that will aid in my active lifestyle that will be a good fit for dealing with my PD. If you have ideas, I would love to hear them.

Until next time.....

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